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Friday, 15th September 2023

Venue : Royale Chulan Kuala Lumpur, Malaysia

Saturday, 16th September 2023

Venue : Royale Chulan Kuala Lumpur, Malaysia

PACTALS PLWALS and Advocacy Programme Day

Venue : Royale Chulan Kuala Lumpur, Malaysia
September 14, 2023
9:00 – 10:20 AM Welcome and introduction Seung-Hyun KIM, Korea
Albert KOO, Malaysia
Calaneet BALAS, United States
Presentation and Discussion
How do you see the fundamental rights of People Living with ALS/MND and their caregivers, in your region.
Jessica MABE, Colombia
Cathy CUMMINGS, Canada
Lightning talk – Japan ALS Association
Beyond ALS
Hitomi HASEBE, Japan
Katsushi TAMAKI, Japan
Lightning talk – MND Australia and Fight MND
The MND Collective – leveraging research collaboration into better outcomes for people living with MND
Gethin THOMAS, Australia
10:20 – 10:50 AM Coffee Break  
10:50 – 12:20 PM Discussion
Assistive technologies -Necessity is the mother of invention
David ALI, Australia
Sara FELDMAN, United States
David MEISSNER, United States
Sakinah SABIRIN, Malaysia
Lightning talk – Asha Ek Hope Foundation
Exciting update from India
Ajay GUPTA, India
Lightning Talk – QurAlis
Challenges of ALS/MND clinical trials & opportunities in Asia-Pacific

Kristina JOHNSON, United States

12:20 – 1:20 PM Lunch  
1:20 – 2:25 PM Discussion
Education and resources in ALS/MND
Melinda KAVANAUGH, United States
Lightning talk - MND Malaysia
How something that negative news can be made made positive
Albert KOO, Malaysia
2:25 – 2:55 PM Coffee Break  
2:55 – 4:40 PM Presentation and Q&A
Emergency preparedness for PALS and CALS

Colleen O´CONNELL, Canada

Presentation and Q&A
Children caregivers
Melinda KAVANAUGH, United States
Lightning talk – MND Malaysia
MND Malaysia Services & Support

Benny NG, Malaysia

Closing Albert KOO, Malaysia
Nortina SHAHRIZAILA, Malaysia
Cathy CUMMINGS, Canada
4:40 – 5:30 PM Networking  
Submit Abstract Register Online