September 14, 2023 | ||
9:00 – 10:20 AM | Welcome and introduction | Seung-Hyun KIM, Korea Albert KOO, Malaysia Calaneet BALAS, United States |
Presentation and Discussion How do you see the fundamental rights of People Living with ALS/MND and their caregivers, in your region. |
Jessica MABE, Colombia Cathy CUMMINGS, Canada |
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Lightning talk – Japan ALS Association Beyond ALS |
Hitomi HASEBE, Japan Katsushi TAMAKI, Japan |
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Lightning talk – MND Australia and Fight MND The MND Collective – leveraging research collaboration into better outcomes for people living with MND |
Gethin THOMAS, Australia | |
10:20 – 10:50 AM | Coffee Break | |
10:50 – 12:20 PM | Discussion Assistive technologies -Necessity is the mother of invention |
David ALI, Australia Sara FELDMAN, United States David MEISSNER, United States Sakinah SABIRIN, Malaysia |
Lightning talk – Asha Ek Hope Foundation Exciting update from India |
Ajay GUPTA, India | |
Lightning Talk – QurAlis Challenges of ALS/MND clinical trials & opportunities in Asia-Pacific |
Kristina JOHNSON, United States |
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12:20 – 1:20 PM | Lunch | |
1:20 – 2:25 PM | Discussion Education and resources in ALS/MND |
Melinda KAVANAUGH, United States |
Lightning talk - MND Malaysia How something that negative news can be made made positive |
Albert KOO, Malaysia | |
2:25 – 2:55 PM | Coffee Break | |
2:55 – 4:40 PM | Presentation and Q&A Emergency preparedness for PALS and CALS |
Colleen O´CONNELL, Canada |
Presentation and Q&A Children caregivers |
Melinda KAVANAUGH, United States | |
Lightning talk – MND Malaysia MND Malaysia Services & Support |
Benny NG, Malaysia |
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Closing | Albert KOO, Malaysia Nortina SHAHRIZAILA, Malaysia Cathy CUMMINGS, Canada |
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4:40 – 5:30 PM | Networking |